The Parent and Sibling’s Support of Pediatric Cancer
DOI:
https://doi.org/10.62404/jhse.v2i2.41Keywords:
Cancer , Sibling, Support , PediatricAbstract
A child's cancer diagnosis causes a family to experience a tremendous deal of uncertainty. Fearing what lies ahead, parents and siblings frequently worry about how therapy will impact their child's and their family's lives. Siblings and parents might feel a variety of emotions, including guilt, rage, despair, and melancholy. Siblings of ill children deal with their own psychological and emotional difficulties. The circumstances they find themselves in may cause them to feel scared, nervous, or even furious. This study aimed to describe the support provided by parents and siblings to children with cancer in West Sumatra. This research utilized a cross-sectional design and was carried out from November 2023 to March 2024 at the Childhood Cancer Care West Sumatra. The study involved 55 children, chosen using an accidental sampling method. The TEIQUE-CF instrument was employed in this research, with descriptive analysis being conducted. Approximal, 61.8% of parents and siblings are emotional about paediatric cancer. By discussing these factors, families may better prepare mentally and emotionally for this protracted and difficult journey. Children with cancer have a greater chance of making a full recovery, both mentally and physically, if they get strong support from their parents and siblings.References
Adamczewska-Wawrzynowicz, K., Wiącek, A., Kozłowska, A., Mikosza, K., Szefler, L., Dudlik, W., Dey, S., Varghese, N., & Derwich, K. (2023). Modern treatment strategies in pediatric oncology and hematology. Discover Oncology, 14(1). https://doi.org/10.1007/s12672-023-00658-7
Alexander, E. S., O’Connor, M., & Halkett, G. K. B. (2023). The Psychosocial Effect of Parental Cancer: Qualitative Interviews with Patients’ Dependent Children. Children, 10(1), 1–18. https://doi.org/10.3390/children10010171
Avoine-Blondin, J., Dumont, É., Marquis, M. A., Duval, M., & Sultan, S. (2022). Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool. BMC Palliative Care, 21(1), 1–13. https://doi.org/10.1186/s12904-022-01025-z
Boeriu, E., Borda, A., Miclea, E., Boeriu, A. I., Vulcanescu, D. D., Bagiu, I. C., Horhat, F. G., Kovacs, A. F., Avram, C. R., Diaconu, M. M., Vlaicu, L. F., Sirb, O. D., & Arghirescu, S. T. (2023). Prognosis Communication in Pediatric Oncology: A Systematic Review. Children, 10(6). https://doi.org/10.3390/children10060972
Boyde, C., Berger, B., Längler, A., Neugebauer, L., & Jacobsen, S. L. (2024). Interaction ‑ focused music therapy with cancer ‑ affected children and their significant others : a randomized controlled feasibility study with subsequent intervention ( INMUT ). Pilot and Feasibility Studies, 1–15. https://doi.org/10.1186/s40814-024-01490-8
Davies, J., & O’Connor, M. (2023). Mothers’ Experiences Post-Childhood Cancer Treatment: A Qualitative Study. Journal of Child and Family Studies, 32(9), 2614–2624. https://doi.org/10.1007/s10826-022-02379-x
Erker, C., Yan, K., Zhang, L., Bingen, K., Flynn, K. E., & Panepinto, J. (2018). Impact of pediatric cancer on family relationships. Cancer Medicine, 7(5), 1680–1688. https://doi.org/10.1002/cam4.1393
Gannika, L., Mulyadi, M., & Masi, G. N. M. (2023). Long-term effects of chemotherapy in children with cancer. Malahayati International Journal of Nursing and Health Science, 6(6), 442–450. https://doi.org/10.33024/minh.v6i6.12663
George. (2011). Emotion Regulation in Childhood with Cancer (Acute Lymphocytic Leukemia). American Medical Journal, 2(2), 79–86. https://doi.org/10.3844/amjsp.2011.79.86
Kashif, M., Faizan, M., Zafar, H., Saeed, M., & Shahid, F. (2022). Challenges Faced by Post-Treatment Childhood Cancer Patients and Families; The Children’s Hospital, Lahore Experience. Pakistan Armed Forces Medical Journal, 72(3), 1055–1059. https://doi.org/10.51253/pafmj.v72i3.7265
Koumarianou, A., Symeonidi, A. E., Kattamis, A., Linardatou, K., Chrousos, G. P., & Darviri, C. (2021). A review of psychosocial interventions targeting families of children with cancer. Palliative and Supportive Care, 19(1), 103–118. https://doi.org/10.1017/S1478951520000449
Koutná, V., & Blatný, M. (2020). Socialization of Coping in Pediatric Oncology Settings: Theoretical Consideration on Parent–Child Connections in Posttraumatic Growth. Frontiers in Psychology, 11(September), 1–13. https://doi.org/10.3389/fpsyg.2020.554325
Kuhn, B., Moussalle, L. D., Lukrafka, J. L., Penna, G. B., & de Oliveira Soares Júnior, A. (2022). Evaluation of the functional capacity and quality of life of children and adolescents during and after cancer treatment. Revista Paulista de Pediatria, 40. https://doi.org/10.1590/1984-0462/2022/40/2020127
Lazdia, W., & Kusuma, V. C. (2019). Pengalaman Orang Tua Dalam Menghadapi Perilaku Sibling Rivalry Pada Anak. REAL in Nursing Journal, 2(1), 29. https://doi.org/10.32883/rnj.v2i1.488
Løkkeberg, B., Sollesnes, R., Hestvik, J., & Langeland, E. (2020). Adolescent siblings of children with cancer: a qualitative study from a salutogenic health promotion perspective. International Journal of Qualitative Studies on Health and Well-Being, 15(1). https://doi.org/10.1080/17482631.2020.1842015
Mavroveli, S., Petrides, K. V, Shove, C., & Whitehead, A. (2008). Investigation of the construct of trait emotional intelligence in children. European Child & Adolescent Psychiatry, 17(8), 516–526.
Merianti, L., & Nuine, E. A. (2018). Analisis Hubungan Perkembangan Emosional Anak Umur 8 – 12 Tahun Terhadap Kejadian Sibling Rivalry. Jurnal Endurance, 3(3), 474. https://doi.org/10.22216/jen.v3i3.3242
Monios, A. (2015). Families of Children with Cancer. 37(March), 725–735. https://doi.org/10.1037/hea0000619.Trajectories
Ndlovu, S., Hlongwa, M., & Ginindza, T. (2022). Mapping evidence on the risk factors associated with pediatric cancers in sub-Saharan Africa: a scoping review. Systematic Reviews, 11(1), 1–14. https://doi.org/10.1186/s13643-022-01931-6
Neugebauer, C., & Mastergeorge, A. M. (2021). The Family Stress Model in the Context of Pediatric Cancer: A Systematic Review. Journal of Child and Family Studies, 30(5), 1099–1122. https://doi.org/10.1007/s10826-021-01928-0
Paul, V., Inhestern, L., Winzig, J., Nasse, M. L., Krauth, K. A., Rutkowski, S., Escherich, G., & Bergelt, C. (2023). Emotional and behavioral problems of pediatric cancer survivors and their siblings: Concordance of child self-report and parent proxy-report. Psycho-Oncology, 32(8), 1248–1256. https://doi.org/10.1002/pon.6175
Racine, N. M., Khu, M., Reynolds, K., Guilcher, G. M. T., & Schulte, F. S. M. (2018). Quality of life in pediatric cancer survivors : contributions of parental distress and psychosocial family risk. 25(1), 41–48.
Saab, Y., Naccache, M., Zeenny, R., & Sholy, L. (2021). Risk Factors for Malignancies in Pediatric Population: Results of A Population-Based Case-Control Study. 1–23.
Sels, L., Goubert, L., & Verhofstadt, L. (2021). Siblings dealing with pediatric cancer : A family- and context- oriented approach. April. https://doi.org/10.1177/1043454221992303
Siebel, E. K. U., & Anggraeni, L. D. (2022). Factors Influencing Parental Adherence To Bring Their Child Undergoing Chemotherapy at Dr.Cipto Mangunkusumo Hospital. Jurnal Ilmiah Ilmu Keperawatan Indonesia, 12(1), 9–15.
Snaman, J., McCarthy, S., Wiener, L., & Wolfe, J. (2020). Pediatric palliative care in oncology. Journal of Clinical Oncology, 38(9), 954–962. https://doi.org/10.1200/JCO.18.02331
Wawrzynski, S. E., Schaefer, M. R., Schvaneveldt, N., & Alderfer, M. A. (2021). Social support and siblings of children with cancer: A scoping review. Psycho-Oncology, 30(8), 1232–1245. https://doi.org/10.1002/pon.5689
Wechsler, A. M., Bragado-Álvarez, C., Hernández-Lloreda, M. J., Lopes, L. F., & Perina, E. M. (2022). Psychological Adjustment of Children with Cancer: Relapse and Survival Perspectives. Psico-USF, 27(1), 1–15. https://doi.org/10.1590/1413-82712022270101
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Journal of Health Sciences and Epidemiology
This work is licensed under a Creative Commons Attribution 4.0 International License.